Saving Papa

Karen's Kickstarter project research


Amyloidosis : Definition by Mayo Clinic Staff

Amyloidosis (am-uh-loi-DO-sis) is a rare disease that occurs when a substance called amyloid builds up in your organs. Amyloid is an abnormal protein that is usually produced in your bone marrow and can be deposited in any tissue or organ.

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Cardiac Amyloidosis

Martha Grogan, M.D., Mayo Clinic cardiologist, reviews the treatment options available for patients with cardiac amyloidosis. This is part three of a series of three videos that review what every patient needs to know about cardiac amyloidosis.

Part 1: What is Amyloidosis and how does it affect the heart?


Part 2: Tests and Assessments


Part 3: Treatment Options
Treatment Options


What Are Clinical Trials?

A critical part in the process of bringing new therapies to patients is clinical development, the study of potential new therapies in humans.

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Pfizer’s Vyndaqel® (tafamidis) First Therapy Approved in the European Union for the Rare and Fatal Neurodegenerative Disease Transthyretin Familial Amyloid Polyneuropathy (TTR-FAP)

Approval Represents a Major Advance, as Vyndaqel is the First and Only Medication Currently Approved to Delay Peripheral Neurologic Impairment in Stage 1 TTR-FAP Patients (November 17, 2011)

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